Mothering Mum

Earlier this year, I did a blog series on 'Mothering'; interviewing mums at their various stages of life and various stages of mothering. Some of those posts have taken a while to be added to the series. Here is one of them, from a friend of mine, who is caring for her own mother.

I'm not my Mum's mother, I want to hold her in high regard, respect her and protect her dignity. However, I do feel that some of the true mothering skills given to me by God, are probably used to their full when I’m caring for her.
 
I’ve developed skills, while caring for mum. Skills like compassion, listening, physical touch, warmth, giving time, being patient, meeting basic needs, advocating, encouragement, repeating things over and over again. All these things I'm meant to do with my own kids too. However, I'm more careful to exercise them with mum, and more acutely aware of them.  I recently had a job interview and one of my daughters helped me prepare. She spontaneously listed some of my strengths and abilities. “These are all the things I see in you in the way you are with nana”, she said.
 
This encouraged me greatly as it hasn't always been that way. My mum was finally diagnosed with Vascular Dementia with Alzheimer’s maybe two years ago. This has affected her memory and not her character which is a blessing. For the past four years, she has suffered with Lymphoma requiring Chemotherapy and frequent hospital visits. Just over a year ago, mum suffered a stroke leaving her with a dense right sided weakness and complete paralysis of her right arm. Where she used to be fully mobile, she is now confined to a chair/wheelchair and needs help transferring and with all her basic needs. 

The dementia diagnosis was difficult. We all knew it and she feared it. She got so upset that I had taken her to the memory clinic. She got very angry with me, asking if I thought she was mad, and if she was going to get locked away. It was a distressing time. I remember having to be straight with her. I talked to her about the effects on her brain which in no way reflected who she was or how we all felt about her. She needed constant reassurance.  During this time and the previous few years, she would ring me frequently. She was always apologetic and needing reassurance about tablets which she couldn't remember taking, or fears about missing hospital appointments or anxiety when she had lost something. A lot of the 'care' was done over the phone and was very repetitive - she would often ring minutes later forgetting she had called and we would have the same conversation, like ground hog day!

Surprisingly I often felt/feel very patient during these episodes but recognise that I didn't years beforehand. When I was in my teens/early twenties I recall getting very frustrated with mum when she couldn't remember things - I felt she wasn't in my world. Looking back I know that the Dementia was affecting mum. When I was a child, I recall watching a documentary with mum about Alzheimer's and she alluded to the fact she had fears this would happen to her as there were already memory problems.
 
I remember a poignant time when my dad became seriously ill with cancer and was admitted to hospital. Mum collapsed. I was staying to look after her overnight and found her unconscious in the bathroom, which was frightening. I was in my twenties and remember being acutely aware of the feeling that I had no-one to care for me. She needed caring for too now. It was a shocking time and I felt full of grief. It was like I was losing two parents.  There have been periods of grief all along, like longing for a grandparent to be there for my kids, potentially losing the family home and longing for emotional and practical support that just hasn't been there. The most recent sense of grief has been seeing my mother unable to walk anymore and adjusting to the fact she now needs everything doing for her. 
That's been hard. 

God showed me probably a year ago two things that were to change those longstanding feelings. One day, I was acutely aware of God having very large wings and I felt them covering me. I felt this represented a mother's love; He was meeting this need.  It made me feel secure. I was reminded of Psalm 91; hiding in the shadow of His wings and was also reminded of a time with one of my little girls. We saw a mother duck protecting her young ; we counted 14 little emerging ducklings which had been hiding under her wings. I felt God ask, "how big do you think my wings are in comparison to this little duck?" This was enormously comforting.
 
Serving my mum has at times taken up a lot of time.  My kids have found it hard when they've not had my full attention, particularly when I was paying regular hospital visits to mum several times a week.  My husband and I would 'tag team' it.  As soon as he got in from work I would leave.  We had quite a long period of time where we did not have a meal altogether.  I had to advocate for my mum when she did not get the best treatment and be a voice for her when she did not want to be put in a nursing home. We got the kids praying but sometimes I just wanted it all to stop. Ministry work took a back burner and I found myself saying 'no' to more. But at the same time, wondering if it was wrong spending so much time with mum, instead of serving church.

During this time I read James 1v27 which impacted and changed my thinking. “Religion that is pure and undefiled before God, the Father, is this: to visit orphans and widows in their affliction, and to keep oneself unstained from the world.” I felt it was time to ‘put my religion into practice’.  In serving my mum, I was doing God's will and exercising His love for her. This has genuinely helped me feel joyful about having the privilege of being able to serve her at this stage of her life. I help her mainly emotionally with reassurance, with her medical needs and practically with housework.
 
My husband, kids and I are determined to help her enjoy herself by taking her out in the wheelchair for day trips. She enjoys these days even though she's often forgotten them the next day. But we all remember them and I believe this strengthens our family and increases the bond between us and her. Although this whole scenario isn't what I would have planned in my head (easy to romanticise what family should be/look like), I know this is a precious time and don't want to miss out on God's blessing on us and on her through it all. I have learnt a lot through my mum who has shown strength in so many ways during these seasons. She has a wicked sense of humour. My husband trying to manoeuvre her into the car, can be hilarious. She often ends up giggling so much we are unable to sit her up. She is so determined always to appreciate the little things in life that could just pass her by. She's amazing.
 
My relationship with my mum is tender and precious. Whilst I'm not responsible for all my mum's needs, I am put here by God to help meet some of them. It grows in love more and more all the time (both ways).  She says I light up her day and I say to her that I love her and love spending time with her. I'm grateful for this as we once were not able to communicate so well in that way. It's a blessing to be her daughter and I thank God for her input into my life.