Earlier this year, I did a blog series on 'Mothering'; interviewing mums at their various stages of life and various stages of mothering. Some of those posts have taken a while to be added to the series. Here is one of them, from a friend of mine, who is caring for her own mother.
I'm not my Mum's mother, I want to hold her in high regard, respect her
and protect her dignity. However, I do feel
that some of the true mothering skills given to me by God, are probably used
to their full when I’m caring for her.
I’ve developed skills, while caring for mum. Skills like compassion, listening,
physical touch, warmth, giving time, being patient, meeting basic needs,
advocating, encouragement, repeating things over and over again. All these
things I'm meant to do with my own kids too. However, I'm more careful to exercise them with mum, and more acutely aware of them. I recently had a job interview and one of my
daughters helped me prepare. She spontaneously listed some of my strengths and
abilities. “These are all the things I see in you in the way you are with nana”,
she said.
This encouraged me greatly as it hasn't always been that way. My mum was finally diagnosed with Vascular Dementia
with Alzheimer’s maybe two years ago. This has affected her memory and not her
character which is a blessing. For the
past four years, she has suffered with Lymphoma requiring Chemotherapy and frequent
hospital visits. Just over a year ago,
mum suffered a stroke leaving her with a dense right sided weakness and
complete paralysis of her right arm.
Where she used to be fully mobile, she is now confined to a chair/wheelchair
and needs help transferring and with all her basic needs.
The dementia diagnosis was
difficult. We all knew it and she feared it. She got so upset that I had taken her
to the memory clinic. She got very angry with me, asking if I thought she was
mad, and if she was going to get locked away. It was a distressing time. I
remember having to be straight with her. I talked to her about the effects on
her brain which in no way reflected who she was or how we all felt about
her. She needed constant
reassurance. During this time and the
previous few years, she would ring me frequently. She was always apologetic and
needing reassurance about tablets which she couldn't remember taking, or fears
about missing hospital appointments or anxiety when she had lost
something. A lot of the 'care' was done
over the phone and was very repetitive - she would often ring minutes later
forgetting she had called and we would have the same conversation, like ground
hog day!
Surprisingly I often felt/feel
very patient during these episodes but recognise that I didn't years
beforehand. When I was in my teens/early
twenties I recall getting very frustrated with mum when she couldn't remember
things - I felt she wasn't in my world. Looking back I know that the Dementia was affecting mum. When I was a child, I recall watching a
documentary with mum about Alzheimer's and she alluded to the fact she had
fears this would happen to her as there were already memory problems.
I remember a poignant time when my dad became seriously ill with cancer and was
admitted to hospital. Mum collapsed. I
was staying to look after her overnight and found her unconscious in the
bathroom, which was frightening. I was
in my twenties and remember being acutely aware of the feeling that I had
no-one to care for me. She needed caring
for too now. It was a shocking time and
I felt full of grief. It was like I was losing two parents. There have been periods of grief all along,
like longing for a grandparent to be there for my kids, potentially losing the
family home and longing for emotional and practical support that just hasn't
been there. The most recent sense of
grief has been seeing my mother unable to walk anymore and adjusting to the
fact she now needs everything doing for her.
That's been hard.
God showed me probably a year ago
two things that were to change those longstanding feelings. One day, I was acutely aware of God having
very large wings and I felt them covering me.
I felt this represented a mother's love; He was meeting this need. It made me feel secure. I was reminded of Psalm 91; hiding in the
shadow of His wings and was also reminded of a time with one of my little girls.
We saw a mother duck protecting her young ; we counted 14 little emerging
ducklings which had been hiding under her wings. I felt God ask, "how big
do you think my wings are in comparison to this little duck?" This was enormously comforting.
Serving my mum has at times taken up a lot of time. My kids have found it hard when they've not
had my full attention, particularly when I was paying regular hospital visits
to mum several times a week. My husband
and I would 'tag team' it. As soon as he
got in from work I would leave. We had
quite a long period of time where we did not have a meal altogether. I had to advocate for my mum when she did not
get the best treatment and be a voice for her when she did not want to be put
in a nursing home. We got the kids
praying but sometimes I just wanted it all to stop. Ministry work took a back burner and I found
myself saying 'no' to more. But at the
same time, wondering if it was wrong spending so much time with mum, instead of
serving church.
During this time I read James 1v27 which impacted and changed my thinking. “Religion that is pure and undefiled before God, the Father, is this: to
visit orphans and widows in their affliction, and to keep oneself unstained
from the world.”
I felt it was time to ‘put my religion into
practice’. In serving my mum, I was
doing God's will and exercising His love for her. This has genuinely helped me feel joyful
about having the privilege of being able to serve her at this stage of her
life. I help her mainly emotionally with
reassurance, with her medical needs and practically with housework.
My husband, kids and I are determined to help her enjoy herself by taking her
out in the wheelchair for day trips. She
enjoys these days even though she's often forgotten them the next day. But we all remember them and I believe this
strengthens our family and increases the bond between us and her. Although this
whole scenario isn't what I would have planned in my head (easy to romanticise
what family should be/look like), I know this is a precious time and don't want
to miss out on God's blessing on us and on her through it all. I have learnt a lot through my mum who has
shown strength in so many ways during these seasons. She has a wicked sense of
humour. My husband trying to manoeuvre her into the car, can be hilarious. She
often ends up giggling so much we are unable to sit her up. She is so determined always to appreciate the
little things in life that could just pass her by. She's amazing.
My relationship with my mum is tender and precious. Whilst I'm not responsible for all my mum's needs, I am put here by God to help meet some of them. It grows in love more and more all the time
(both ways). She says I light up her day
and I say to her that I love her and love spending time with her. I'm grateful for this as we once were not
able to communicate so well in that way.
It's a blessing to be her daughter and I thank God for her input into my
life.